Assalamualaikum,bismillah...
What is lamellar ichthyosis?
Lamellar ichthyosis is a condition that mainly affects the skin. Infants with this condition are typically born with a tight, clear sheath covering their skin called a collodion membrane. This membrane usually dries and peels off during the first few weeks of life, and then it becomes obvious that affected babies have scaly skin, and eyelids and lips that are turned outward. People with lamellar ichthyosis typically have large, dark, plate-like scales covering their skin on most of their body. Infants with lamellar ichthyosis may develop infections, an excessive loss of fluids (dehydration), and respiratory problems. Affected individuals may also have hair loss (alopecia), abnormally formed fingernails and toenails (nail dystrophy), a decreased ability to sweat (hypohidrosis), an increased sensitivity to heat, and a thickening of the skin on the palms of the hands and soles of the feet (keratoderma). Less frequently, affected individuals have reddened skin (erythema) and joint deformities (contractures).
How common is lamellar ichthyosis?
Lamellar ichthyosis is estimated to affect 1 in 100,000 individuals in the United States. This condition is more common in Norway, where an estimated 1 in 91,000 individuals are affected.
ALHAMDULILLAH, dengan bangganya, saya Mawaddah Athilah adalah salah seorang daripada pesakit Lamellar Ichthyosis. (o yeah,now I know how to spell),haha lol.
Penyakit ni sangat RARE, dan Alhamdulillah dalam ramai2 manusia yg lahir pada 22/3/1997, Allah SWT pilih aq untuk terima Anugerah ni. Ouh yes,aq jugak salah seorang daripada team Premature Birth.
My Life Journey sbg pesakit Lamellar Ichthyosis......
TravelogueWaddah... bersambung.
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